Our first spotlight focuses on the Ohmer ladies from our KIDS Michigan chapter. Read on to learn more about this amazing family and why they support pediatric clinical research!
“On the outside, I look like any other teenager. I may look like your own daughter, your cousin, even your best friend. On the inside, my body looks like less than 5% of the total world’s population – both children and adults. My body is constantly fighting to stay healthy. My body has been diagnosed with Type 1 Diabetes, an autoimmune disease with no known cause and no cure… YET.
I share this with you not because I want sympathy, but because sometimes, I can’t just be a teenager like all of the other ones that you may know. I am my own caregiver and taking care of my health is a priority. When I check my blood sugar, I have to make life-sustaining decisions on the amount of insulin I need or the glucose that I must eat – and all of this needs my attention, right there and then. I say YET to a cure because I have a team that supports me and that team is made up of adults like my parents, my doctors, and my researchers that work tirelessly to help me battle this disease. This team has made a choice to help by creating Clinical Research trials that allow me to participate so that we can create ways to make living with T1D better for all kids like me. These research projects include testing new diabetes medical apps, trying new infusion therapies and even sharing journals from my daily life.
I feel lucky because while I live with Type 1 Diabetes today, I know that it isn’t going to be forever. With my family, my team and the opportunity to participate in Clinical Research, we will have a cure for Type 1 Diabetes during my lifetime.”
“Ten years! I have been living with Type 1 Diabetes for a lifetime: My entire lifetime. What has changed during your lifetime? Maybe there wasn’t microwaves or GPS. Maybe there wasn’t cell phones or computers? I can tell you that in my lifetime, thanks to Clinical Research opportunities, I have helped to test new blood sugar meters that are smaller so that my fingers and body hurt less. I have tried new insulin therapies to help determine if my medication was effective for my growing body. I can tell you that I helped to make an app so even the littlest children could communicate about how they were feeling. I can tell you that I helped doctors to understand what and how little kids eat, so that they could better educate families on nutrition. I can tell you that without Clinical Research, none of this would have been possible and I might not be able to do all of the things that I love to do like shooting hoops, playing golf, getting a lead role in my school play and even just hanging out with my friends.
If you want to support kids during their lifetime, please consider supporting Clinical Research, so all kids are able to be the best!”
“As you can imagine, having both of your daughters, your ONLY daughters, diagnosed with Type 1 Diabetes is difficult. However, from a very early age (three years old to be exact), my husband and I found that it helped our youngest daughter (first to be diagnosed) to feel empowered by sharing her knowledge of the disease that she were living with. Our very first clinical research project was participating through video recordings of meal planning with two young researchers that were trying to establish toddler eating habits to determine more effective medication dosages – something that can be very life-threatening for young children if the wrong dose is dispensed. Our youngest loved hearing that she was helping other little girls and boys and she took the study very seriously, often asking how the other children were feeling and if they were better. Not long after, our family was asked to participate in multi-year study about children diagnosed at a young age and their health outcomes. Again, our youngest daughter shared that she felt like it was important to share what she had learned with others as a way to pay it forward. That same year, our oldest was diagnosed with Type 1 Diabetes too. With shock, we learned that our participation in Clinical Research was even more meaningful than imagined. That’s the thing about helping others… it is more far-reaching than one can imagine, yet ultimately, it can touch close to home. Thank you for supporting Clinical Research as it truly provides the best outcomes for all of our children!”
Amy, Mom of Two Daughters Living with Type 1 Diabetes