Around the world, various types of groups, all working for better child advocacy in healthcare, work within iCAN.
Kids and Families Impacting Disease through Science, or KIDS, is an advisory group of children, adolescents and families focused on understanding, communicating and improving the process of medical innovation for children. KIDS is sponsored by the American Academy of Pediatrics (AAP) Section on Advances in Therapeutics and Technology (SATT) in collaboration with local AAP chapters, children’s hospitals, schools and universities, and other partners.
Currently, there are KIDS chapters in Connecticut, Georgia, Missouri, Ohio, Illinois, Michigan, Texas, Florida, Barcelona, Australia, and France.
Kids Can (Vancouver)
Canadian youth are the fastest growing end-user group of mobile technology, but their involvement in research and development of this technology has been limited. Direct engagement of young people in research can be mutually beneficial to both researchers and youth. While young people can lay the groundwork for brilliant scientific careers by early involvement in research, researchers can benefit from the novel ideas of youths and their ability to find realistic solutions to problems their demographic faces.
Young Person’s Advisory Groups
The Children Specialty’s Young Person’s Advisory Group was set up in 2006 with the support of the National Children’s Bureau. The aim of the group is to increase the input and influence of children and their families/carers into the development of clinical research.
YPAG now consists of five groups based in Liverpool, Birmingham, London, Bristol and Nottingham. They are all made up of 10-15 members who are aged between 8-19.
ScotCRN Young Persons Group
ScotCRN (Scottish Children’s Research Network) is funded by the Chief Scientist Office (CSO) in the Scottish Government and is tasked with supporting clinical research to improve the safety and efficacy of children’s medicines and healthcare. We do this by providing the infrastructure in the form of Clinical Research Facilities at each children’s hospital staffed by experienced paediatric research nurses and providing support in the set up, research governance and conduct of trials.